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1) MedHelp International http://medhlp.netusa.net/index.htm Bills itself as the most comprehensive patient information/education system in the world. All-volunteer staff of physicians and health care professionals provides information in lay language. 2) MedWeb http://www.cc.emory.edu/WHSCL/medweb.html Supported by Emory University Health Sciences Center Library, it has more than 7,000 links on the Internet. MedWeb's Consumer Information Section: http://www.gen.emory.edu/medweb/medweb.consumer.html 3) Healthweb http://hsinfo.ghsl.nwu.edu/healthweb/index.html A cooperative effort among health science librarians, it has access to evaluated non-commercial, health-related resources. Healthweb's Consumer Education Internet Resources http://www.uic.edu/~pjones/chmain.html - Disease categorized annotated descriptions of high quality patient information web sites. 4) The Medical Matrix: Guide to Internet Clinical Medical Resources http://www.slackinc.com/matrix A project of the Internet Working Group of the American Medical Informatics Association, it is one of the most comprehensive collections of Internet resources in the health sciences. Its section on patient education and support can be found at http://www.slackinc.com/matrix/PATIENT.HTML 5) Online Consumer Health Information (from Health Information Resources & Services, Inc.) http://www.hirs.com/constemp.html 6) World Health Organization, International Public Health Information 7) CDC - Healthy People in a Healthy World. The Centers for Disease Control and Prevention provides information to promote public health. 8) The Lyme Disease Network 9) Cornucopia of Disability Information (CODI) gopher://val-dor.cc.buffalo.edu Developed at SUNY/Buffalo for consumers and professionals, it has links to state (New York), national and international resources. 10) NIAID (National Institute of Allergy and Infectious Diseases - NIH) Research on AIDS, tuberculosis and other infectious diseases, allergic and immunologic diseases, asthma, transplantation and more. |
USENET NEWSGROUPS and LISTSERVS
Similar to public bulletin boards, these are forums for sharing ideas, questions and opinions in a particular subject area. Here are some examples:
alt.support.arthritis alt.support.attn-deficit alt.support.cancer alt.support.crohns-colitis alt.support.epilepsy alt.support.headaches.migraine clari.tw.health.aids alt.support.obesity misc.health.diabetes |
alt.support.asthma alt.support.big-folks alt.support.cerebral-palsy alt.support.depression alt.support.eating-disord bit.listserv.transplant alt.support.mult-sclerosis misc.health.alternative misc.health.kids |
ALZHEIMER - for anyone with an interest in Alzheimer's disease or related dementing disorders in older adults. Subscribe to majordomo@wubios.wustl.edu.
CANCER-L - a public list for discussion of cancer-related issues. Subscribe to listserv@wvnvm.wvnet.edu.
HEPV-L - Primarily intended for people who have been diagnosed with chronic hepatitis, but also open to doctors, nurses, family members, etc. Subscribe to listserv@sjuvm.stjohns.edu
MENOPAUS - a discussion of menopause and the sharing of remedies. Subscribe to listserv@psuhmc.hmc.psu.edu.